On February 9, The Sequoia Undertakinga VA-based non-profit main nationwide well being information-sharing initiatives, printed two guides: Steering to States: Legislating Technical Customary Definitions for Present State-Delicate Well being Knowledge Legal guidelineswhich highlights the necessity of aligning delicate well being information legal guidelines with nationwide technical requirements, and Operationalizing Automated Consent: Actionable Steering for Well being Care Suppliers, Payors, and Different Well being Care Organizationswhich outlines steps and offers instruments for healthcare suppliers, well being methods, payers, and their companions to gather, handle, and honor affected person consent confidently, effectively, and in a computable method that permits automated processing.
The Steering to States consists of mannequin language supposed to assist legislators and lay the inspiration for enabling high-confidence, automated methods that apply every state’s privateness guidelines and respect a person’s privateness preferences concerning how delicate well being information is shared. The information’s content material benefited from intensive public enter throughout The Sequoia Undertaking’s public suggestions interval, the group acknowledged.
In accordance with a information launch, the guides are a follow-up to the non-profit’s Shifting Towards Computable Consent: A Panorama Evaluatea whitepaper printed in April 2025 that recognized present challenges to gathering, managing, and honoring affected person consent in digital well being data trade (HIE).
“Taken collectively, these two guides are sensible playbooks for trade and authorities to work independently and collaboratively to clean the trail to a – hopefully very close to – way forward for automated and computable consent methods,” mentioned Kevin Day, principal enterprise advisor at Edifecs, a Cotiviti enterprise, and co-chair of the Privateness & Consent Workgroup, in an announcement.
“The patchwork of state and federal regulation at present hinders the event of computable, automated methods to guard delicate well being information and honors sufferers’ requests to share – or not,” famous Melissa Soliz, accomplice at Coppersmith Brockelman PLC, and co-chair of the Privateness & Consent Workgroup, in an announcement.
The sources have been developed by the Privateness & Consent Workgroupa part of Sequoia’s Interoperability Issues program.
The information, Operationalizing Automated Consent: Actionable Steering for Well being Care Suppliers, Payors, and Different Well being Care Organizations, is open for public suggestions till March 13, 2026.
